What Living With Idiopathic Hypersomnia Is Really Like

What Living With Idiopathic Hypersomnia Is Really Like

(I Fell Asleep While Writing This)
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Sleep is my drug; I can’t live without it, I can’t get enough of it, and I crave it every second of every day. To the average person, I might just sound like your typical sleep-deprived college student surviving off of very little shut-eye and numerous shots of espresso. How can sleeping too much be a medical issue? Many times I have been reminded how “blessed” I am that I have no problems falling asleep or staying asleep. Sure, I’m not saying I don’t enjoy dozing off moments after my head hits the pillow, but sometimes I want to be able to fully experience the world beyond the dreams that conspire in my mind. How can I live when all my brain and my body want is to sleep?

It’s called Idiopathic Hypersomnia. I’m guessing you haven’t heard of it, and I don’t blame you for not knowing about such a rare disorder. Everyone seems to know what insomnia is, so when asked what my disorder means, I usually refer to it as the opposite of insomnia; instead of sleeping too little, I sleep too much. Idiopathic Hypersomnia (IH) is commonly defined as excessive daytime sleepiness. My brain is constantly telling me to sleep, but even after hours and hours of resting, I often feel more tired than I did before. On rare occasions, I will feel completely awake, and it is the most amazing feeling ever, something that the average person might take for granted.

Even though my symptoms were not fully apparent until my teenage years, I have always been a tired person. When I was a baby, my mom couldn’t even breastfeed me because I would fall asleep before she got the chance. Once I got older, my tiredness was easily mistaken for laziness, which is ironic because people with IH are the least lazy people that I know. We want so desperately to be able to do what everyone else does, but often times, we just physically and mentally are not capable of keeping up with the busy day-to-day life. I did not find out that I had IH until I had a sleep study done the middle of my senior year of high school. Before that time, my family, friends, and teachers didn’t understand why I would cancel plans, turn in homework late, or sleep all afternoon and still all through the night. Receiving a diagnosis was one of the best moments of my life. Some people might not understand why that is, but for me it was an answer to my problems, and in some ways, it was a solution as well.

Now that I have been diagnosed, I have been on a stimulant called Modafinil. Although it often takes away my appetite, for the most part, it does a decent job of keeping me awake. However, mornings are still the absolute worst. I love mornings, but I often miss them because I can’t will myself out of my bed. Because of this, I requested that my school let me sign up for classes early in order to ensure that I didn’t have any early morning classes. I don’t know if my school didn’t understand the depths of my disorder because they had never heard of it, but I was not welcomed with understanding. In fact, I was told that there was only so much that could be done for me without risking me jeopardizing the system. Well, if you have ever been in college, I’m sure you know that the system is already pretty messed up, but this was just another situation where I felt misunderstood and hopeless.

Sleepy is not a synonym for lazy. I often imagine my life without idiopathic hypersomnia. I think of all the things that I could accomplish, all the challenges that I wouldn’t have to face, and all the mornings that I would be awake for. After I am done feeling sorry for myself, I move on to think about all the things I have accomplished, all the lessons I have learned, and all the relationships I have built not only despite of IH, but also because of IH. All I ask for is understanding. I’m not making excuses, and I’m not being lazy, but I am still trying to just figure this all out. It might take a few (or a lot) of naps along the way, but someday, I hope to get my mornings back.



If you would like to know more about IH, visit hypersomniafoundation.org

Cover Image Credit: Grace Vaughn

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65 Truths College Students Need to Hear Right Now

Truth every college student needs to hear.
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1. The best memories are ones you actually can remember.

2. God isn’t going to ask you if you were in a top-tier sorority or fraternity at the gates.

3. You failed a test, not your life.

4. Numbers don’t define you.

5. That includes the number you see that is your grade.

6. Also, how much you weigh.

7. As well as if you are a “7/10” on a so-called “hot scale.”

8. Or if you can bench press 200 lbs. (@ all the guys at the gym, please chill.)

SEE ALSO: 7 Reminders Every College Student Needs To Hear Before The Semester Ends

9. Innocence is nothing to be ashamed of.

10. Neither are mistakes.

11. But learn from your mistakes. Mistakes can be lessons, which can be the biggest blessing.

12. Your metabolism isn’t what it used to be and that is okay.

13. You may not always understand what God is doing, but I promise He has a plan.

14. Every person you meet is battling their own struggles.

15. Life isn’t always great moments.

16. But you have to walk through the forest to get to the mountain top.

17. Your heart isn’t damaged. It is temporarily broken but it will be fixed.

18. However, the only one who can fix a broken heart is the one who created it.

19. So a cute boy or hot girl can’t put the pieces back together.

20. Neither can ice cream.

21. But ice cream can totally help.

22. Stop texting your ex. He/She is your ex for a reason.

23. Loving Jesus means loving people.

24. Loving Jesus also means loving the image of Him in the mirror you see.

25. Stop hiding your emotions. Stop crying in the bathroom or behind a locked door. You have people in your life who care about you.

26. Suicide is never the answer.

27. Breathe in, breathe out.

28. Do you feel your heart pump? Do you feel the air exiting your body? That is a sign you are here for a purpose. Your life is no mistake.

29. Just because you doubt, doesn’t mean you don’t believe in Jesus.

30. However, when walking on the water scares you, look to Jesus and keep your eyes on Him.

31. If you have the opportunity to go to school go. There are young girls around the world who would do anything to sit at the desk you are complaining about.

32. Don’t pick a career based on money.

33. However, I promise you can use any passion or gift to serve a purpose bigger than yourself if you allow yourself to give it to the One who gave it to you.

34. You don’t need pretty prayers to please God.

35. Talk to Him like you are talking to a friend.

36. Look for the good in everyone.

37. That includes the mean girl who no one likes. Chances are she is mean for a reason. Someone was once mean to her. Kill her with kindness.

38. Pray to have the Lord’s eyes. See people with love.

39. Try to have the Lord’s hands, always be reaching out to others.

40. Each morning, pray to have the Lord’s feet and go where He calls you.

41. It is a bad day, not a bad life.

SEE ALSO: What It's Like To Be A College Student In April

42. You don’t need a six-pack to find a man who loves you.

43. You need a spouse who will be able to look at you when you are 80, and wrinkly and maybe a little chunky, and you need him to love you then. If he loves you for your body and your hair, I promise he doesn’t actually love you. Looks fade, but love is eternal. Find someone who loves you like Jesus.

44. Do some squats.

45. But squat so you feel good about yourself, not to attract the opposite sex.

46. You are never too old to find a new hobby.

47. You were beautiful before someone told you.

48. If you don’t know if you are in relationship or not, leave. You deserve clarity, not insecurity.

49. You deserve friendships that are mutual.

50. The best Friday nights are spent with a puppy and food. It is okay to not always be social.

51. Stop worrying about whether your crush will text you back.

52. Stop over analyzing everything in general.

53. Pray for your future spouse.

54. However, also pray for your future bridesmaids/groomsmen. Some of the most influential people you may have in your life you may not have even met yet.

55. Storms bring strength.

56. And storms bring rainbows if you are patient and observant.

57. Stop Pinteresting your dream life and start living it.

58. The Bible is actually extremely relatable. Open it up. Read it.

59. Romans 8:28 “and we know God works for the good of those who love Him, who have been called according to His purpose.” God is on your team. He wants you to have moments of celebration. He has a purpose for you greater than your bad day.

60. Never forget what Jesus did for you on that cross. When he died for you, it was painful and brutal. It was ugly. It was love. Don’t let that truth ever become numb to you no matter how many times you have heard the story.

61. There is nothing wrong with carbs.

62. Study. And don’t wait for the night before.

63. Find someone who you can look up to.

64. Also, never forget that there is always someone looking up to you. Act like someone you would want your future children to be. Act in a way that reflects wisdom.

65. Smile more, you are loved by the one who hung the stars and painted the sea. He created puppies and carbs–yet still loves you more. That is something to celebrate.

College is tough and life is hard. You are going to have moments where all you want to do is celebrate life with your best friends, but you will also have moments where you just want to lock the door, ignore everyone, and have a good cry. Never forget that your worth comes from something greater than your Biology grade, and from Someone greater that the one who broke your heart.

You aren’t too cool for Christ in college. Christ is a necessity for you in your life. He can hold your hand during your heartbreaks and failures and celebrate with you when you get the text back or a passing grade in foreign language. He loves for you and cares for you more than your sorority or fraternity ever will.

So buy your books, do your homework, but never forget when you are walking to you 8:00 a.m. you regretfully signed up for, to look up. Look at the clouds and the sky and thank your creator that in a big big world with many beautiful things, He still loves our messy hearts even more. So this one is for the boys for the King. This life is for the One who laid down His life.

I promise college is more fun when you dance with your Savior. Follow His lead and let him take you on a journey where you can find your purpose. You may not know where you are going, but you do know who you are following.

So never forget that although classes may be hard, and your metabolism may be slowing down–God is still good. He turns our ashes into beauty and our trials into our testimony. Do life with your creator and I promise you that you will have more than you need.

Romans 8:28 “And we know God works for the good of those who love Him, who have been called according to His purpose.”

Check out my website for more articles on self-worth <3

Twitter: gracev96

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ASU Students Push For A Healthier Dining Hall To Counter 'Freshman 15' Fears

The freshman 15 is an avoidable curse, but many students will continue to follow into its trap.

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Arizona State University students are pushing for change within the downtown Phoenix dining hall as they strive to avoid the infamous freshman 15.

The downtown Phoenix campus offers fewer dining options than the Tempe campus and has a less appetizing dining hall. The freshman 15 is a common scare among students living in the dorms, who are often freshman.

The freshman 15 is defined as a student who gains 15 pounds or more in their first year of college. Studies prove the average freshman does not exercise the right amount, is sleep deprived, has a poor diet, increases their stress level, alcohol consumption, and fatty food intake, which is most likely causing their weight gain.

Lauren Hernandez

Daniella Rudoy, a journalism major and fitness instructor at the SDFC, relived her freshman year as she provided tips for incoming freshman.

"There are a lot of workouts you can do in your dorm room as long as you have access to YouTube or a floor. You can go on a run, a walk, or do exercises that do not require equipment," Rudoy said in support of college fitness.

Rudoy said that mental health, fitness, and nutrition all correlate with one another.

"I follow the saying abs are made in the kitchen. So if you are working out day and night, but eating a giant pizza and chicken wings with a pack of beer when you come home you aren't doing yourself much good," Rudoy said.

Lauren Hernandez

The main cause for weight gain is increased alcohol consumption. 80 percent of college students drink and this includes binge drinking, which is unhealthy for many reasons.

Students who do not drink are most likely gaining weight because of their exposure to an all-you-can-eat dining hall. The downtown Phoenix campus offers a salad bar as their only consistent healthy option for students, therefore students are left eating hamburgers, fries, and pizza.

"I haven't been to the dining hall this semester. Last semester, I went because I had no other options. I am a vegetarian and the dining hall is not accommodating to those with allergies or food restrictions. I find it very difficult to find vegetarian options," Lexi Varrato, a journalism major said.

Lauren Hernandez

Varrato explained that she believes the freshman 15 is "100 percent real" and that incoming freshman should research their meal plans and ask their school how their dietary restrictions will be accommodated before purchasing a non-refundable meal plan.

Megan Tretter, a nursing major at Seattle University emphasized that not every dining hall is like ASU's and that the freshman 15 is "definitely not a problem" at her school.

"I always eat healthy at my dining hall. There are a lot of good and healthy options at Seattle University. I usually go to the smoothie line in the morning, have a salad for lunch, and make myself an acai bowl after work with avocado toast in our floor's kitchen," Tretter said in support of her school's strive for healthy options.

College students across the United States have healthier dining options than ASU, but many colleges still face the same problems that students here are facing.

Tara Shultz, a journalism major at ASU believes she has avoided the "very real" freshman 15 by living at home.

"I believe the freshman 15 targets dorm residence and first-year students who do not live at home as they do not have their parents as a guide and are forced to eat at a dining hall that only serves fatty foods," Shultz emphasized.

Lauren Hernandez

The downtown Phoenix campus offers students access to the SDFC, YMCA, and Taylor Place gym, where students can take group fitness classes, run on a track, play basketball, or swim. Alternative options for students are purchasing a membership at Orangetheory or EOS Fitness.

Most students agreed with journalism major Vanessa Gonzalez that they have little time to work out due to their workload, but many students like Varrato, Tretter, and Rudoy explained that they try to work out every day as it is a stress reliever and it enriches their mental health.

Steve Fiorentino, the owner of Powered Up Nutrition encourages college students to learn what they are putting in their bodies.

"I think it starts with nutrition. Students believe they can outwork a bad diet and I believe that is their number one mistake. My advice is to stop eating fast foods and start eating whole and healthy foods along with supplements," Fiorentino stated.

The freshman 15 is an avoidable curse, but many students will continue to follow into its trap. The campus dining hall is not always the reason to blame as students have the option to decrease their meal plans, become active, and make healthy choices!

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