Living with a neuromuscular disease can be rough at times, but it has become a part of me that I’ve learned to love. If you are living with muscular dystrophy or a similar disease, you’ll understand all of these things.

When you’re waiting for your PCA to bring you food:

And they end up giving you way too much:

When you get a PCA that can’t cook:

When you get a PCA that’s a good cook:

When your PCA starts talking really loudly on the phone in the morning:

When someone drives your chair without asking:

When you’ve explained something to your PCA three times and they still don’t know how to do it:

When something gets stuck in your wheels:

When you realize you can do something by yourself without needing help:

When someone cute helps you out:

When none of your PCAs can come and you’re stuck with your family helping you:

When you try to teach people how to use your medical equipment:

When your chair breaks down right before you’re about to go out:

Living with MD can be hard but you know you wouldn’t want it any other way: