Living With An Invisible Illness
Start writing a post
Health and Wellness

Living With An Invisible Illness

Chronic illness: what you see and what you don't.

20
Living With An Invisible Illness
99 PC Wallpapers

Chronic illness. It’s something I don’t talk about very often because it’s really not a light conversation topic. It’s uncomfortable. It’s private. But it’s been weighing on my mind recently, and when things weigh on my mind, I write.

A brief look at me, and you could say I look fine -- healthy and happy. Most days I am, but some days I’m not. Chronic illness is called the “invisible illness” because it often goes unseen, people don’t understand how serious one’s condition is or how awful they may feel simply because it’s not physically evident -- someone with a chronic illness can appear perfectly normal. I live with a condition called Chronic Urticaria, or Chronic Hives. Hives are red, swollen and itchy patches of skin. In addition to these hives, these reactions are sometimes accompanied by Angioedema which is swelling that affects the deeper layers of skin, often in the eyes, lips, hands and almost anywhere else. This can make it uncomfortable to talk, keep my eyes open or use my fingers. If the reactions are severe enough, they sometimes affect my breathing or swallowing and I have to use an EpiPen.

It’s been almost four years since my diagnosis, and I wake up with these reactions on almost a daily basis. I’ve taken and been on almost every allergy drug you could possibly think of. I’ve had blood drawn and shots and tests and too many urgency care trips and doctors appointments to count -- but I do not write about this to attract sympathy or pity, in fact, that’s a big reason I usually don’t talk about it. If anything, I hope you develop a better understanding of chronic illness and how difficult it can be for someone.

The truth is, it doesn’t just affect someone physically, but emotionally and mentally. Along with the horrible side effects of one’s chronic illness, they can be accompanied by depression and anxiety. Did my life completely change when I was diagnosed with a chronic illness? Absolutely. Some days are harder than others. Chronic illness leads to a lot of questions and often no answers. Your body is the one thing that is truly yours on this planet, the one thing that no one can ever take away from you, but sometimes it feels as though chronic illness can do just that.

I don’t talk about my chronic illness because I would love for everyone to believe that I’m happy and healthy all the time, I would love to pretend my chronic illness doesn’t exist. I’m stubborn and independent and I absolutely loathe asking for help. But I’m not healthy and happy every second of the day -- and no one is. And as much as I hate to admit it, I need help sometimes. I do my best to hide what I deal with everyday, and most people don’t know what I deal with or how it affects me. And for the most part, I don’t want them to know. So why am I writing this?

Some will try to belittle what you’re going through, what you deal with or try to make their own assumptions and decisions about your own state of illness and how it affects you. It’s easy to dismiss me when I say I had an allergic reaction or really bad hives one day, especially if I can’t come to class or do certain things. It’s easy to say that someone is making their illness up, is using it for attention or as an excuse, or is exaggerating their illness. However, you can’t and shouldn’t do that. The only people who have any idea of what living with a chronic illness is like are those with chronic illnesses. I ask you to use your sympathy to understand that.

I was at an appointment with my allergist the other week, and she looked at the red, itchy hives covering my legs and said, “That’s not okay, we need to get you better. I know you’ve been tough, you’ve been so tough, but you shouldn’t have to live like this.” I almost burst out into tears right there in that doctor’s office. I have been tough, but it’s okay to not always be tough. To say how I feel without any sugar coating it: it sucks. Chronic illness absolutely sucks.

For some, chronic illness is permanent, incurable. For all, it’s unfair. I can be upset about my situation, and sometimes I am. But most days I choose to become stronger, more resilient and a more understanding person because of it. My chronic illness is not me, it’s just something I have. It doesn’t define me or the life I live. God doesn't give you anything you can't handle, and I do believe that.

If you’re close to anyone with a chronic illness or condition, just let them know you’re there. Offer them your love and support. Even though you may not understand completely what they’re going through, just let them know they don’t have to suffer alone.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
the beatles
Wikipedia Commons

For as long as I can remember, I have been listening to The Beatles. Every year, my mom would appropriately blast “Birthday” on anyone’s birthday. I knew all of the words to “Back In The U.S.S.R” by the time I was 5 (Even though I had no idea what or where the U.S.S.R was). I grew up with John, Paul, George, and Ringo instead Justin, JC, Joey, Chris and Lance (I had to google N*SYNC to remember their names). The highlight of my short life was Paul McCartney in concert twice. I’m not someone to “fangirl” but those days I fangirled hard. The music of The Beatles has gotten me through everything. Their songs have brought me more joy, peace, and comfort. I can listen to them in any situation and find what I need. Here are the best lyrics from The Beatles for every and any occasion.

Keep Reading...Show less
Being Invisible The Best Super Power

The best superpower ever? Being invisible of course. Imagine just being able to go from seen to unseen on a dime. Who wouldn't want to have the opportunity to be invisible? Superman and Batman have nothing on being invisible with their superhero abilities. Here are some things that you could do while being invisible, because being invisible can benefit your social life too.

Keep Reading...Show less
houses under green sky
Photo by Alev Takil on Unsplash

Small towns certainly have their pros and cons. Many people who grow up in small towns find themselves counting the days until they get to escape their roots and plant new ones in bigger, "better" places. And that's fine. I'd be lying if I said I hadn't thought those same thoughts before too. We all have, but they say it's important to remember where you came from. When I think about where I come from, I can't help having an overwhelming feeling of gratitude for my roots. Being from a small town has taught me so many important lessons that I will carry with me for the rest of my life.

Keep Reading...Show less
​a woman sitting at a table having a coffee
nappy.co

I can't say "thank you" enough to express how grateful I am for you coming into my life. You have made such a huge impact on my life. I would not be the person I am today without you and I know that you will keep inspiring me to become an even better version of myself.

Keep Reading...Show less
Student Life

Waitlisted for a College Class? Here's What to Do!

Dealing with the inevitable realities of college life.

96125
college students waiting in a long line in the hallway
StableDiffusion

Course registration at college can be a big hassle and is almost never talked about. Classes you want to take fill up before you get a chance to register. You might change your mind about a class you want to take and must struggle to find another class to fit in the same time period. You also have to make sure no classes clash by time. Like I said, it's a big hassle.

This semester, I was waitlisted for two classes. Most people in this situation, especially first years, freak out because they don't know what to do. Here is what you should do when this happens.

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments