The Unpredictability Of Ehlers Danlos Syndrome
Start writing a post
Health and Wellness

The Unpredictability Of Ehlers Danlos Syndrome

Ehlers Danlos Syndrome has stolen my ability to plan for my future; but it has expanded my ability to see the beauty in each day.

353
The Unpredictability Of Ehlers Danlos Syndrome
Imgarcade

When I was younger I had everything planned out. Whether it was tomorrow’s outfit, the weekend’s social calendar, or my plans for college and beyond, it was planned. I know not everyone feels the need plan it all out like that, and I do enjoy some spontaneity, but in reality, most of us have some degree of certainty in what our future—whether that be tomorrow, next week, or next year—will hold.

When I got sick, I gradually lost my ability to feel certain in any kind of plan. Ehlers Danlos Syndrome and Gastroparesis stole my ability to plan for a future. EDS is unpredictable. Unforeseeable. Uncertain. How can I make plans for the future when I don’t even know how to plan for today?

At any moment EDS can cause me severe pain, fatigue, nausea, and a myriad of other symptoms that leave me bed bound and non functional. My condition is progressive and there are no successful treatments to stop it, only medications that help manage the symptoms. I live each day hour by hour, just hoping that I’ll feel better as each day goes on, but knowing there’s a chance things could go south at any moment.

I can’t plan a day ahead without knowing there’s a chance I’ll have to cancel plans. I’m not reliable, but that’s not my fault. I don’t know if I’ll make it back to school, if I’ll graduate, if I’ll have a job. I don’t know if I’ll get married or have a family. My future is one giant question mark. Right now, I’m just happy to be alive.

EDS has changed my life, but it has also helped me see things in a new perspective. Each day is a gift. Every happy moment, every laugh, every smile, every breath is a gift. Never take life for granted. Tell your family and friends you love them every chance you get. Talk to your crush. Adopt a dog because you’ll save two lives by doing so. Always watch the sunset. Find joy wherever you can and have no regrets.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.

Ready or not, here come the holidays, friends, and if you're as obsessed with the spirit of the season as I am, you are much more ready than not. Thanks to Hallmark Channel's Monopoly game making it possible to celebrate all year long, you can be ready now, too!

Keep Reading... Show less
Stephanie Tango

The pandemic has been in our world for more than half of 2020 and people are still acting stupid. If anything, they're getting stupider. They think that the virus is gone. It's not. Stop going to frat parties. Stop trying to go places without a mask. I wish things were normal, too. They're not.

Keep Reading... Show less
Kai Parlett

In the summer of 2017, 20 type 1 diabetics completed a 10-week 4,000+ mile bike ride from New York to California. They biked against the advice of doctors, family, and friends. Many were skeptical that people with diabetes could complete such a physically challenging trip without putting themselves in danger due to their disease.

Keep Reading... Show less

That's right, you heard that correctly: Demi Lovato and Max Ehrich called off their engagement after the couple originally announced their engagement in July after beginning to date in March.

Keep Reading... Show less
Swoon

Demi Lovato's Called-Off Engagement Reminds Us Of The Importance Of Taking Our Time In Relationships

While this may be another hardship she sadly has to endure, I know she will find a way to inspire and help others through it.

6693

I am heartbroken.

Keep Reading... Show less

We all love a good ol' sappy Christmas movie and this year, the Hallmark Channel is finally giving us what we want: diversity.

Keep Reading... Show less
Health and Wellness

Seasonal Depression Is Real And It Deserves Our Attention

Check in on your friends throughout the winter season, it can be brutal.

534

As we transition seasons and enter the last few months of the year, some are feeling grand about this natural shift. But that doesn't mean everyone is thrilled that the weather is cooling down — it's important to extend your knowledge to the phenomenon that is seasonal depression.

The lack of sunlight during the later seasons of the year, beginning with autumn, triggers a state of depression for about 15% of the population. This results in the lack of serotonin provided by the sun, causing it to be hard for some to do a lot of the things that would normally be deemed simple tasks to do during the earlier times in the year like getting out of bed, showering, going to work/school, etc. A major difference is an intense need for sleep similar to a hibernation effect.

Keep Reading... Show less
Health and Wellness

September Is Suicide Awareness Month, But Mental H​ealth Is An Everyday Discussion

Mental illnesses deserve our attention 365 days a year.

1423

September is Suicide Awareness Month, providing an opportunity to raise awareness, further educate yourself, and remember the reality that mental illnesses present. Yet it's critical to understand that suicide awareness is not an annual Instagram hashtag to use and forget. Actively advocating for mental health resources, progress in education, and a broken stigma is an everyday ask — an activity that we can each participate in.

Keep Reading... Show less
Facebook Comments