When Chronic Illness Takes Away Your Favorite Things
Start writing a post
Health and Wellness

When Chronic Illness Takes Away Your Favorite Things

It will hurt every time, but you will survive this

When Chronic Illness Takes Away Your Favorite Things
Aidan Meyer

It hurts the most the first time. That hurt never goes away though. It happens again and again as you lose more and more of your past life to your illness. Sometimes the hobbies and activities that you always assumed that you would keep are lost as well; that is one of the worst pains of them all.

My first loss was cheerleading. After two torn shoulders and surgeries from Ehlers-Danlos Syndrome, it became clear that I would not return to this sport. I've always found a way though. While I may not be able to cheer personally, I have continued to coach 3rd graders on how to compete in the sport I love.

After the loss of this hobby, I began to choose hobbies that I could do despite my illness. I started coaching, writing, learning sign language, and I became involved in politics and special education. I have become an advocate for disabled rights. I have surprised myself with how much good I have made out of the bad. After picking up this series of hobbies that I could do despite my illnesses, I never anticipated losing another activity I loved.

Two days I realized I am truly losing the ability to play my instrument. At my autonomic testing, I blew into a mouthpiece, and my BP went so low that it almost zeroed out. I had noticed for a while that something was wrong. I knew that I could not make it through warm-ups without a break which was not typical. I also had begun adjusting to breathing more often in my pieces. I did not expect for it to get to the point where simply playing a note causes me to pass out or become incredibly nauseous.

It is devastating to lose something you love, especially when it happens over and over again. This is the sad truth of being chronically ill though; you will lose major pieces of your life and identity along the way. This was not the first passion I lost, and I am sure it will not be the last. It does not mean that it did not hurt any less though. You don't "get used to" feeling sick every day of your life. You don't "get used to" losing friend after friend, passion after passion. You never "get used to" the loss that chronic illness overwhelms you with.

I know that I will get past this as I do with every loss. I am constantly losing abilities and parts of my life, but I am also constantly gaining. I gain new spoonies. I gain new forms of advocacy. I gain a better understanding of life.

To any other spoonie experiencing this, it will be okay. You will find new passions. You will find new people. You will find a new purpose in life. It will just take some time. Enjoy what you have while you have it; you never know when it will be taken from you.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.

Everyone's been here. And, truthfully, it sucks. But in order to move on and get past something you need to allow yourself to feel it for what it is--all of the heartbreak and pain--and then you can start to take steps move on.

Keep Reading... Show less

The Christmas season is coming to an end, but it's not too late to get some last-minute movies in! Unfortunately, this year didn't look like a typical Christmas. While we can't have any big Christmas parties or family gatherings, we can still celebrate at home! Christmas is the best time for nostalgia, and we could all use some warm and fuzzy feelings as we wrap up a tough year and enter a new one that hasn't been proven any calmer, either.

As a kid who grew up in the 2000s, I can think of some of my favorite staple Christmas movies. If you're looking for recommendations or just a walk down memory lane, check out the list below.

Keep Reading... Show less

As we enter the new year, you might be looking for a great show to kick-off 2021. Look no further, I have the perfect recommendation. "The Wilds" was released on Amazon Prime last month and has been gaining traction steadily since then. This series of 10 one-hour episodes tells the stories of eight girls who find themselves on a deserted island after their plane crashed while they are on their way to a resort. Unlike other survival shows, there's a bit more to the story than what first meets the eye. This show is unique in characters, storytelling methods, and plot.

If you aren't convinced yet, allow me to provide you with a list of further persuasion.

Keep Reading... Show less

10 Things TikTok Made Me Buy, And Now My Life Is So Much Better

Where would I be without my Revlon hair dryer or CeraVe skin products?! Thanks, TikTok.


TikTok is a great way to see what products are trending. People are sharing tips and tricks about items that they use to make their life happier, healthier, or just easier.

Keep Reading... Show less

Online classes and virtual reality in general have been the staple of 2020. One day in March, everything shut down and we all had to learn how to work, teach, study, do therapy, and take classes remotely without much preparation. So, it's been a roller-coaster experience, and definitely not what we expected.

Keep Reading... Show less

11 TV Characters Who Are Irritating BEYOND Belief

Maybe they never really did anything seriously wrong, but oh my god they are annoying af.


Have you ever been watching your favorite show, all comfortable and relaxed, and then that one character that you just can't stand pops up on the screen and ruins your mood? I know I certainly have. These characters aren't necessarily evil or horrible people, but they do have personalities that make them incredibly irritating. They're the kind of characters that make you want to yell at the writer, "what the hell were you thinking with this one?" Perhaps they have never hurt a fly, but it doesn't matter since their character just straight-up sucks.

By the way, some of my arguments contain spoilers, so fair warning.

Keep Reading... Show less

20 Songs You Should REALLY Add To Your Winter Playlist

Watch the snow gently falling out your window and put these songs on to get in the winter mood.


For the majority of these songs, I can't really explain why, but they remind me of winter. Maybe it's their slow pace, their magical synth sounds, or their melancholy lyrics, but all of these songs give me winter vibes. If you're looking to add some songs to your winter playlist, give these ones a listen.

Keep Reading... Show less
Facebook Comments