Put The Lyme In The Coconut

Put The Lyme In The Coconut

It's time to shake things up, help build a force behind supporting lyme disease awareness.
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Social media has provided access and exposure to raising awareness and funds to waves of organizations. Lyme disease is next.

Lyme disease is caused by a bacteria, transmitted by a special species of black-legged ticks -- via a painless bite often not detected until afterwards. According to The Lyme Disease Challenge, fewer than half of those with lyme disease even recall being bitten by a tick. Even scarier, the lyme disease bacterium has the capability of reaching your brain within the first 24 hours of being bitten.




There are three easy steps to join the Lyme Disease Challenge. Follow the steps listed below and donate $10.

1. Take a bite. Capture your best tangy sourpuss face via photo or short video.

2. Share a fact. Use your caption or video to feature some of the shocking statistics about lyme disease (listed below).

3. Pass it on. Help empower the campaign by challenging three other individuals such as your pledge grandma, roommate or chapter president. Mention them in your caption, or give them a quick holler in your short video.

Now, share share share! Use your Instagram, Twitter, Facebook and the hashtag #LymeDiseaseChallenge to help build momentum behind this campaign! Think about how huge the Ice Bucket Challenge became. Social media has the power to propel these ideas and push awareness.

Here are some facts provided by their website you could include in your post!

  • Children are at the highest risk of contracting lyme disease and are more vulnerable to central nervous system infections.
  • Transmission of lyme disease and other infections can take place in a matter of minutes, particularly if the tick is not removed properly.
  • Lyme disease has been called “The Great Imitator" and can be mistaken for ALS, MS, chronic fatigue syndrome, fibromyalgia, alzheimer's, parkinson's, autism, and other illnesses.
  • Research suggests that lyme disease and other infections can be spread from mother to baby during pregnancy.
  • Studies show that standard laboratory tests recommended by the CDC to diagnose lyme disease miss approximately half of actual cases, leading to misdiagnosis and an infection that is more difficult to treat.
  • Over 63 percent of patients treated for lyme disease continue to suffer symptoms that can be debilitating.
  • The CDC estimates that there are 300,000 new cases of lyme disease each year in the United States. Some experts believe the actual number of new cases could be as high as one to two million new cases per year, in the US alone.
  • Lyme disease has been reported in every state except Hawaii, and has been found on every continent except Antarctica.
  • Lyme disease has six times more new cases each year than HIV/AIDS, yet it receives less than one percent of the funding.
  • Fewer than 50 percent of patients with lyme disease recall a tick bite or any rash.
  • There are no tests available to prove that the bacteria that causes lyme disease has been eradicated, or that the patient is cured after treatment.
  • Ticks can carry many different types of bacterial, viral and parasitic infections -- some life-threatening -- which can further complicate tick-borne disease diagnosis, treatment and recovery.

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Yes, I Had A Stroke And I'm Only 20

Sometimes bad things happen to good people.
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Recently, I read an article on Cosmo that was written by a woman that had a stroke at the ripe old age of 23. For those of you who don't know, that really doesn't happen. Young people don't have strokes. Some do, but it's so incredibly uncommon that it rarely crosses most people's minds. Her piece was really moving, and I related a lot -- because I had a stroke at 20.

It started as a simple headache. I didn't think much of it because I get headaches pretty often. At the time, I worked for my parents, and I texted my mom to tell her that I'd be late to work because of the pain. I had never experienced a headache like that, but I figured it still wasn't something to worry about. I went about my normal routine, and it steadily got worse. It got to the point that I literally threw up from the pain. My mom told me to take some Tylenol, but I couldn't get to our kitchen. I figured that since I was already in the bathroom, I would just take a shower and hope that the hot steam would relax my muscles, and get rid of my headache. So I turned the water on in the shower, and I waited for it to get hot.

At this point, I was sweating. I've never been that warm in my life. My head was still killing me. I was sitting on the floor of the bathroom, trying to at least cope with the pain. Finally, I decided that I needed to go to the hospital. I picked up my phone to call 911, but I couldn't see the screen. I couldn't read anything. I laid down on the floor and tried to swipe from the lock screen to the emergency call screen, but I couldn't even manage that. My fine motor skills were completely gone. My fingers wouldn't cooperate, even though I knew what buttons needed to be pressed. Instead of swiping to the emergency call screen, I threw my phone across the room. "Okay," I thought, "Large muscle groups are working. Small ones are not".

I tried getting up. That also wasn't happening. I was so unstable that I couldn't stay standing. I tried turning off the running water of the shower, but couldn't move the faucet. Eventually, I gave up on trying to move anywhere. "At what point do I just give up and lie on the floor until someone finds me?" That was the point. I ended up lying on the floor for two hours until my dad came home and found me.

During that two hours, I couldn't hear. My ears were roaring, not even ringing. I tried to yell, but I couldn't form a sentence. I was simply stuck, and couldn't do anything about it. I still had no idea what was going on.

When the ambulance finally got there, they put me on a stretcher and loaded me into the back. "Are you afraid of needles or anything?" asked one EMT. "Terrified," I responded, and she started an IV without hesitation. To this day, I don't know if that word actually came out of my mouth, but I'm so glad she started the IV. She started pumping pain medicine, but it didn't seem to be doing anything.

We got to the hospital, and the doctors there were going to treat me for a migraine and send me on my merry way. This was obviously not a migraine. When I could finally speak again, they kept asking if I was prone to migraines. "I've never had a migraine in my whole life," I would say. "Do you do any drugs?" they would ask. "No," I repeated over and over. At this point, I was fading in and out of consciousness, probably from the pain or the pain medicine.

At one point, I heard the doctors say that they couldn't handle whatever was wrong with me at our local hospital and that I would need to be flown somewhere. They decided on University of Maryland in Baltimore. My parents asked if I wanted them to wait with me or start driving, so I had them leave.

The helicopter arrived soon after, and I was loaded into it. 45 minutes later, I was in Baltimore. That was the last thing I remember. The next thing I remember was being in the hospital two weeks later. I had a drain in my head, a central port, and an IV. I honestly didn't know what had happened to me.

As it turns out, I was born with a blood vessel malformation called an AVM. Blood vessels and arteries are supposed to pass blood to one another smoothly, and mine simply weren't. I basically had a knot of blood vessels in my brain that had swelled and almost burst. There was fluid in my brain that wouldn't drain, which was why my head still hurt so bad. The doctors couldn't see through the blood and fluid to operate, so they were simply monitoring me at that point.

When they could finally see, they went in to embolize my aneurysm and try to kill the AVM. After a successful procedure, my headache was finally starting to subside. It had gone from a 10 on the pain scale (which I don't remember), to a 6 (which was when I had started to be conscious), and then down to a 2.

I went to rehab after I was discharged from the hospital, I went to rehab. There, I learned simple things like how to walk and balance, and we tested my fine motor skills to make sure that I could still play the flute. Rehab was both physically and emotionally difficult. I was constantly exhausted.

I still have a few lingering issues from the whole ordeal. I have a tremor in one hand, and I'm mostly deaf in one ear. I still get headaches sometimes, but that's just my brain getting used to regular blood flow. I sleep a lot and slur my words as I get tired. While I still have a few deficits, I'm lucky to even be alive.

Cover Image Credit: Neve McClymont

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I'll Always Be An Organ Donor

I mean, outside of the cute little heart I get to have on my state ID.

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Check yes, nod at the clerk, give them a big thumbs up... It's really not hard to sign up as an organ donor. For me, it looks less than five seconds when buying a state ID to tell my clerk that yes, I did want to donate my organs to anyone in need after I died.

Organ donors like myself are always in high demand, especially because only 3 in 1,000 people die in ways that allow for an organ transplant. That wouldn't be too bad if the vast majority of people were organ donors, but only 54% of Americans are signed up to be donors.

Unsplash- Thoracic cavity

But why aren't people donors?

One word: religion.

While most all major religions are not in opposition of organ donation, studies have found that people will cite their religious beliefs are why they're opposed to donating their organs. Many people believe that they may not have access to the afterlife if their bodies aren't fully intact, but I have a problem with this logic.

"God is not unjust; he will not forget your work and the love you have shown him as you have helped his people and continue to help them." Hebrews 6:10.

"None of you truly believes until he loves for his brother what he loves for himself." Saheeh Al-Bukarhi.

Most large religions have this reoccurring theme of altruism, and that's what organ donation is all about: sharing something you have with someone less fortunate. Giving them a body part that I'll no longer be using won't harm me, it will help them, and it will hopefully look good if there's a Big Guy Upstairs.

Unsplash- heart made from neon lights

So go watch an episode of "The Bachelor." In those 60 minutes, 6 people have been added to the organ transplant list.

Go spend a relaxing weekend at the beach. In those two days, 40 people died waiting for an organ transplant.

Go to the DMV. Check that box. Save a life. Save eight lives, even. Be that person's shot at a second life.

It's not like anything is stopping you.

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