5 Things You May Not Know About Cystic Fibrosis
Start writing a post
Health and Wellness

5 Things You May Not Know About Cystic Fibrosis

I just ordered two hamburgers, a large fry, and a chicken nugget meal from McDonald's; please don't judge.

1140
5 Things You May Not Know About Cystic Fibrosis
Caity Martinez

Cystic fibrosis is a life-threatening genetic lung disease that causes a buildup of thick, sticky mucus within the lungs and other organs. I was diagnosed when I was nine years old and it has changed my life entirely. Over the years, I have realized that those who don't live with cystic fibrosis or personally witness anyone who suffers from it, don't know very important aspects of the disease.

1. People with cystic fibrosis cannot be near each other.

You may have heard of the viral story of two patients falling in love despite their disease that forced them to stay away from one another, relating it to a similar plotline, The Fault In Our Stars. This was complete blasphemy for anyone who has cystic fibrosis. The one thing we are told from the very beginning is to stay away from anyone else who has cystic fibrosis.

This is because each patient carries different bacteria within their lungs and this bacteria can be spread. Although it may not be harmful to a normal person, to someone with cystic fibrosis, it can be lethal. There are very potent and strong bacteria that can completely destroy the lungs and cause death.

2. We may look fine, but that doesn't mean we aren't suffering.

Cystic fibrosis is considered an invisible illness. In most cases, you are unable to tell someone suffers from cystic fibrosis. I couldn't tell you how many times people have told me I look amazing even though I had spent the whole week with sleepless nights, coughing up blood, and barely being able to function.

It isn't until you are in the more progressive stages that you can truly see the disease physically.

3. We are on a high fat, high salt diet.

Yes, I just ordered two hamburgers, a large fry, and a chicken nugget meal from McDonald's; please don't judge. People with cystic fibrosis burn calories up to three times faster than a normal person. This is due to the genetic defect that causes the epithelial cells to not balance water and salt properly.

In turn, this leads to the production of thick mucus that causes issues with the pancreas and intestines, disallowing nutrients to be properly absorbed and food to be digested.

4. There is no cure.

There have been so many advancements in cystic fibrosis research. The life expectancy continues to grow. I hope that a cure comes about in my lifetime.

But please also take into consideration that those suffering from cystic fibrosis may hold feelings of fear of the future because there currently is no cure. The best thing to do is to be as supportive and understanding as you can.

5. It can be socially isolating.

From time spent in the hospital to time at home recuperating, you see those in your life thriving and your life just passing by. It can become very lonely and, at times, very hard to go through.

You miss normalcy of the everyday life and freedom of doing what you please. It is easy to get into a negative and isolating cycle. Your support system really means everything in preventing that.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
the beatles
Wikipedia Commons

For as long as I can remember, I have been listening to The Beatles. Every year, my mom would appropriately blast “Birthday” on anyone’s birthday. I knew all of the words to “Back In The U.S.S.R” by the time I was 5 (Even though I had no idea what or where the U.S.S.R was). I grew up with John, Paul, George, and Ringo instead Justin, JC, Joey, Chris and Lance (I had to google N*SYNC to remember their names). The highlight of my short life was Paul McCartney in concert twice. I’m not someone to “fangirl” but those days I fangirled hard. The music of The Beatles has gotten me through everything. Their songs have brought me more joy, peace, and comfort. I can listen to them in any situation and find what I need. Here are the best lyrics from The Beatles for every and any occasion.

Keep Reading...Show less
Being Invisible The Best Super Power

The best superpower ever? Being invisible of course. Imagine just being able to go from seen to unseen on a dime. Who wouldn't want to have the opportunity to be invisible? Superman and Batman have nothing on being invisible with their superhero abilities. Here are some things that you could do while being invisible, because being invisible can benefit your social life too.

Keep Reading...Show less
houses under green sky
Photo by Alev Takil on Unsplash

Small towns certainly have their pros and cons. Many people who grow up in small towns find themselves counting the days until they get to escape their roots and plant new ones in bigger, "better" places. And that's fine. I'd be lying if I said I hadn't thought those same thoughts before too. We all have, but they say it's important to remember where you came from. When I think about where I come from, I can't help having an overwhelming feeling of gratitude for my roots. Being from a small town has taught me so many important lessons that I will carry with me for the rest of my life.

Keep Reading...Show less
​a woman sitting at a table having a coffee
nappy.co

I can't say "thank you" enough to express how grateful I am for you coming into my life. You have made such a huge impact on my life. I would not be the person I am today without you and I know that you will keep inspiring me to become an even better version of myself.

Keep Reading...Show less
Student Life

Waitlisted for a College Class? Here's What to Do!

Dealing with the inevitable realities of college life.

94630
college students waiting in a long line in the hallway
StableDiffusion

Course registration at college can be a big hassle and is almost never talked about. Classes you want to take fill up before you get a chance to register. You might change your mind about a class you want to take and must struggle to find another class to fit in the same time period. You also have to make sure no classes clash by time. Like I said, it's a big hassle.

This semester, I was waitlisted for two classes. Most people in this situation, especially first years, freak out because they don't know what to do. Here is what you should do when this happens.

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments