5 Things You Need To Know About Cystic Fibrosis

5 Things You Need To Know About Cystic Fibrosis

"Yes, I have tried. Yes, I am still trying, and yes, I am still sick."
693
views
I Know It May Not Seem Like It Because I'm Coughing My Head Off, But I Swear I'm Not Contagious!

Okay, so as a girl with Cystic Fibrosis, I tend to have coughing fits WAY more than I plan to (thanks a lot, lungs). And when this happens, obviously people give me frightened looks as if I am dying of some alien disease that is going to take over the world and kill them too.

Not possible.

See, Cystic Fibrosis is genetic and even though it appears that I have the worst head cold of my life and it could infect you, I promise it's just my lungs.

So on behalf of myself and my fellow "cysters" and "fibros," here are 5 things you should know about Cystic Fibrosis so you can stop giving us those uber weird stares...


1. We Cough... All The Time

So as I said before, we have coughing fits a lot. Our bodies are always using coughing as it's natural remedy to rid the mucus from our bodies. Because CF is so complex, we have all kinds of issues with our lungs. We tend to trap nasty bacteria that causes infections and inflammation (causing us to need frequent hospitalizations and intense IV antibiotics)... and if you're lucky like me, we also can develop asthma on top of the Cystic Fibrosis. A lung disease on top of a lung disease is absurd but it happens. So next time you meet a person with CF who is coughing his or her head off, instead of scowling at them, CHEER THEM ON!

2. Don't Judge Me For Making 5 Trips To The Buffet...

Seriously. As a person with Cystic Fibrosis, I have to eat anywhere from 3,000 to 5,000 calories a day... A DAY...This is to maintain a healthy weight. You see, our pancreas doesn't get to do the job it is actually supposed to do because of all that gross, sticky mucus. So we take enzymes (that would normally come from the pancreas) in the form of a pill every time we eat...THAT IS ABOUT 40 PILLS A DAY just for digestion... so to maintain our nutritional goals, we eat a good bit WITH NO REGRETS.

3. There's No Such Thing As Being Too Sweet... Right?

Because our pancreas doesn't work like it's supposed to, not only can we not secrete enzymes, but some of us (ME) can't secrete insulin either... meaning we develop Cystic Fibrosis Related Diabetes (CFRD). SOOOOOO fun. It's always a fun time when we have a random low of 34 and within the same hour have a high spike to 450 when our normal should be 120. Yes, I'm speaking from experience people. But thankfully there are insulin pumps that make life SO much better.


4. The Ocean Has Nothing On Us...

You know when you're outside in the summertime and it's hell on earth and it's inevitable that you're going to sweat (even if you are just walking from your house to your car) and it runs in your eyes? Normally, people just wipe it away and move on, right?? For a person with CF, it induces major burning, temporary blindness and sometimes tears. That's because our epithelial cells can't regulate the way our body's salt passes through the membranes in our body making us have A LOT of excess salt that comes out in our pores. So when we say we are salty... I don't mean I'm in a bad mood... I mean more along the lines of I could personally salt your fries with what comes off of my skin in the summertime.

5. We Are Some Of The Strongest People You Will Meet...

Dealing with work, relationships, school, and #adulting things requires a lot of strength and energy... take all of that and add in a full-time job of caring for your health and you get a whole new picture of strength. Not only do we have to make sure our physical health is maintained, but imagine the mental issues and emotional toll it can take on a person. Knowing that all you're doing is maintaining... not curing. That's perspective. We put on a brave face for others, but inside and behind the closed door, we are mentally exhausted and emotionally drained. If we're lucky, we have an incredible support system of family and friends to back us and encourage us. But more times than none we are all alone with our emotions and thoughts. But nonetheless, we are not defeated. We carry on day-to-day and we will never give up. Because we have the hope that one day CF will stand for Cure Found.

Cover Image Credit: Amye Dykes

Popular Right Now

3 Reasons Why Step Dads Are Super Dads

53723
views

I often hear a lot of people complaining about their step-parents and wondering why they think that they have any authority over them. Although I know that everyone has different situations, I will be the first to admit that I am beyond blessed to have a step dad. Yep, I said it. My life wouldn't be the same that it is not without him in it. Let me tell you why I think step dads are the greatest things since sliced bread.

1. They will do anything for you, literally.

My stepdad has done any and every thing for me. From when I was little until now. He was and still is my go-to. If I was hungry, he would get me food. If something was broken, he would fix it. If I wanted something, he would normally always find a way to get it. He didn't spoil me (just sometimes), but he would make sure that I was always taken care of.

SEE ALSO: The Thank You That Step-Parents Deserve

2. Life lessons.

Yup, the tough one. My stepdad has taught me things that I would have never figured out on my own. He has stood beside me through every mistake. He has been there to pick me up when I am down. My stepdad is like the book of knowledge: crazy hormonal teenage edition. Boy problems? He would probably make me feel better. He just always seemed to know what to say. I think that the most important lesson that I have learned from my stepdad is: to never give up. My stepdad has been through three cycles of leukemia. He is now in remission, yay!! But, I never heard him complain. I never heard him worry and I never saw him feeling sorry for himself. Through you, I found strength.

3. He loved me as his own.

The big one, the one that may seem impossible to some step parents. My stepdad is not actually my stepdad, but rather my dad. I will never have enough words to explain how grateful I am for this man, which is why I am attempting to write this right now. It takes a special kind of human to love another as if they are their own. There had never been times where I didn't think that my dad wouldn't be there for me. It was like I always knew he would be. He introduces me as his daughter, and he is my dad. I wouldn't have it any other way. You were able to show me what family is.

So, dad... thanks. Thanks for being you. Thanks for being awesome. Thanks for being strong. Thanks for loving me. Thanks for loving my mom. Thanks for giving me a wonderful little sister. Thanks for being someone that I can count on. Thanks for being my dad.

I love you!

Related Content

Connect with a generation
of new voices.

We are students, thinkers, influencers, and communities sharing our ideas with the world. Join our platform to create and discover content that actually matters to you.

Learn more Start Creating

Yes, You Have A Narcissist In Your Life, Here's How To Spot Who It Is

You know a narcissist right now, but you don't actually know who it is. There is a distinct connotation to the word narcissist, and there is a reason for that. So let's all figure out who it is together and get rid of the negativity for good.

529
views

There is most likely a narcissist in your life whether you know it or not. I got this great idea to talk about spotting a narcissist from an IGTV post on Instagram by ATTN because I believe that it was really beneficial to hear the information being said. We are supposed to be happy and going back to the negative connotation of the word narcissist, I feel as though to be happy all the time, we shouldn't let negatives be apart of our lives.

Now, narcissists are not the same as being self-conceited, being self-conceded I would define as the lower and more human level to a narcissist because they still know how to be human. Sometimes the self-conceited people can be mistaken as overconfident people and as much as they have similar, there are also differences. But, I am not talking about these two right now, we are going straight to the extreme.

The first trick to spot one is in their sense of humor.

Normal human beings are OK with joking about themselves sometimes. If a friend starts making fun of them about how they entered a room, usually the person that entered the room weird would laugh along with their friends and agree that they entered that room weird. Narcissists would get angry that someone would make fun of them and will never laugh at their small flaws.

Next sign would be how a narcissist will interrupt peoples conversations all the time.

Narcissists only like to talk about themselves, so if the topic of conversation isn't about them, they interrupt the conversation just to change the topic to their own life and problems. To me, this is the "ah ha" tip that people will finally realize the people in their lives. Just realize that sure self-conceded people can do this too, however, they don't do this all the time and know how to communicate with people without just talking about themselves.

Narcissists like to make themselves seem untouchable, they shame normal things that people do just to give themselves a boost higher.

Even if it is everyday tasks like cooking for yourself or for normal interactions with people like being friendly to your neighbors. They could even go to the extreme as making sure you know that they are more liked by your own boyfriend than you. Or the slightly lesser of evil, make you unsure about it. If they have been in the proximity of a celebrity, they will let you know about it at least once a day.

This is how they make themselves feel superior to you.

Jealousy is the fuel of this whole narcissist image, but to me, this topic is also pretty confusing. Since jealousy is the fuel of this whole charade, it can be driven in many different ways. All in which normally come from a strand of jealousy. Whether it's them being jealous of other people or feeling like the other people are jealous of them, it has a soul purpose that leads them to act the way they do.

Also because of this jealousy, they think they can get away with whatever they feel like.

These people feel so superior that they think they can do anything they want making them more superior. Whether there are rules in place or not, they will do what they please with no thought of other people. They are likely to steal from businesses or cut in line. They will even go against friends beliefs and rules. Narcissists then put a big situation on friends because if they were to let it go, it then reinforces to the narcissist that they are okay with the bad behavior.

Now, Is everyone in your life a narcissist because they do one thing in this article?

No! Please, do not start hacking away at your friends because they show traits of narcissism because even though these are specific acts of a narcissist, these acts could also be a form of something else. I just wanted to write about this because, for that one reader that does have a narcissist in their life, they can be more aware and use this knowledge to their benefit when handling one.

Related Content

Facebook Comments