The Issue With Disability Representation In The Media

The Issue With Disability Representation In The Media

Not all things that are seen are to be believed.

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We've seen tons of films and television shows with characters with various physical and mental conditions, especially in recent years. Shaun Murphy in "The Good Doctor," who has autism, is a good example. Or, how about Eddie Redmayne, who earned a 2015 academy award for portraying Stephen Hawking in "The Theory of Everything," or Jacob Tremblay as a child with a facial deformity in "Wonder."

Look at that representation, there's nothing that needs to be changed!

Or is there?

The three actors I mentioned in that opening paragraph have two things in common. First, they portrayed a character with some form of disability. Second, they don't actually have the condition themselves. Can you see this picture I'm painting for you? Disabilities are being represented in the media, but people with disabilities are not.

A study in 2016 found that of the 2% of characters on television with some sort of physical or mental disability, 95% are being portrayed by abled actors. There is nothing worse than false representation, and this is the exact definition. And since the study also found that 20% of the American population has some sort of disability, way more than the 2% currently being represented on television, why don't we cast actual disabled actors for these parts to even out the ratio?

There are a ton of actors with disabilities, all of whom I'm sure would be more than willing to take part in acting… you know, since they are actors. Ability is not even a question, and if it is, it would be adding to the stigma that those with disabilities are less than human. The best thing is, these actors truly know what it's like to have the disability that they are portraying, unlike someone who will never know what it's like, no matter how much they try.

But isn't acting about being someone you're not? Why aren't doctors on T.V. played by real doctors, then?

They aren't being played by real doctors because real doctors are real doctors. They have a career… they aren't actors. Disability is something that, more often than not, is a piece of their identity, like someone's race or gender. There's a reason why blackface is wrong, but why isn't the same thing being said about disability?

What about marketability?

The media has become an industry that focuses more and more on the profit their film or T.V. show makes, and less and less the art that is being produced. But, if marketability is an important factor, how about creating a marketing campaign based on the fact that an actor with a disability is actually playing the part? Or putting a big-named actor into a supporting role (as long as they're not playing a "savior" part).

There is so much more that needs to be changed regarding how the media portrays people with disabilities, the topic of this article being a tiny aspect of this "representation." And this doesn't just happen with films and television shows dealing with disability, but with the lack of gay or transgender people actually being played by gay and transgender actors, or white actors being shoehorned into films or television shows about people of color.

There's a lot to do, but there's a way to get there… you must simply implement the change.

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19 Books Reading Addicts Should Toss In Their Beach Bag Summer 2019

Once you pick up these books, you won't be able to put them back down.

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If you're like me, you love to read tanning by the pool or relaxing at the beach. Something about the summertime just sparks something inside of your brain and you crave a good book. To me, summer reading trumps the rest because no one is assigning you chapter 1-3 or making you read for an assignment. Summer reading is only about you, so you might as well read something you'll love!

Here are 19 books I recommend checking out:

1. "Sharp Objects" by Gillian Flynn

"Fresh from a brief stay at a psych hospital, reporter Camille Preaker faces a troubling assignment: she must return to her tiny hometown to cover the murders of two preteen girls. For years, Camille has hardly spoken to her neurotic, hypochondriac mother or to the half-sister she barely knows: a beautiful thirteen-year-old with an eerie grip on the town. Now, installed in her old bedroom in her family's Victorian mansion, Camille finds herself identifying with the young victims—a bit too strongly. Dogged by her own demons, she must unravel the psychological puzzle of her own past if she wants to get the story—and survive this homecoming."

2. "Dark Places" by Gillian Flynn 

"Libby Day was seven when her mother and two sisters were murdered in "The Satan Sacrifice" of Kinnakee, Kansas. She survived—and famously testified that her fifteen-year-old brother, Ben, was the killer. Twenty-five years later, the Kill Club—a secret secret society obsessed with notorious crimes—locates Libby and pumps her for details. They hope to discover proof that may free Ben. Libby hopes to turn a profit off her tragic history: She'll reconnect with the players from that night and report her findings to the club—for a fee. As Libby's search takes her from shabby Missouri strip clubs to abandoned Oklahoma tourist towns, the unimaginable truth emerges, and Libby finds herself right back where she started—on the run from a killer."

3. "In a Dark, Dark Wood" by Ruth Ware

"Nora hasn't seen Clare for ten years. Not since Nora walked out of school one day and never went back.
There was a dark, dark house
Until, out of the blue, an invitation to Clare's hen do arrives. Is this a chance for Nora to finally put her past behind her?
And in the dark, dark house there was a dark, dark room
But something goes wrong. Very wrong.
And in the dark, dark room....
Some things can't stay secret for ever."





4. "The Woman in Cabin 10" by Ruth Ware

"Lo Blacklock, a journalist who writes for a travel magazine, has just been given the assignment of a lifetime: a week on a luxury cruise with only a handful of cabins. The sky is clear, the waters calm, and the veneered, select guests jovial as the exclusive cruise ship, the Aurora, begins her voyage in the picturesque North Sea. At first, Lo's stay is nothing but pleasant: the cabins are plush, the dinner parties are sparkling, and the guests are elegant. But as the week wears on, frigid winds whip the deck, gray skies fall, and Lo witnesses what she can only describe as a dark and terrifying nightmare: a woman being thrown overboard. The problem? All passengers remain accounted for and so, the ship sails on as if nothing has happened, despite Lo's desperate attempts to convey that something (or someone) has gone terribly, terribly wrong."

5. "One of Us is Lying" by Karen M. McManus

"Pay close attention and you might solve this.

One Monday afternoon, five students at Bayview High walk into detention.
Bronwyn, the brain, is Yale-bound and never breaks a rule.
Addy, the beauty, is the picture-perfect homecoming princess.
Nate, the criminal, is already on probation for dealing.
Cooper, the athlete, is the all-star baseball pitcher.
And Simon, the outcast, is the creator of Bayview High's notorious gossip app.

Only, Simon never makes it out of that classroom. Before the end of detention, Simon's dead. And according to investigators, his death wasn't an accident. On Monday, he died. But on Tuesday, he'd planned to post juicy reveals about all four of his high-profile classmates, which makes all four of them suspects in his murder. Or are they the perfect patsies for a killer who's still on the loose?
Everyone has secrets, right? What really matters is how far you would go to protect them."









6. "Mistress of the Ritz" by Melanie Benjamin

"The Auzellos are the mistress and master of the Ritz, allowing the glamour and glitz to take their minds off their troubled marriage, and off the secrets that they keep from their guests—and each other. Until June 1940, when the German army sweeps into Paris, setting up headquarters at the Ritz. Suddenly, with the likes of Hermann Goëring moving into suites once occupied by royalty, Blanche and Claude must navigate a terrifying new reality. One that entails even more secrets. One that may destroy the tempestuous marriage between this beautiful, reckless American and her very proper Frenchman. For the falsehoods they tell to survive, and to strike a blow against their Nazi "guests," spin a web of deceit that ensnares everything and everyone they cherish."

7. "Tomb of Ancients" by Madeleine Roux

"Fleeing the nightmares of Coldthistle House, Louisa and her friends have taken up in a posh new London residence. But religious zealots from the shepherd's army are flocking to the city in droves, and ominous warnings are being left on Louisa's very doorstep. With the evil influence of her father's spirit growing stronger, Louisa knows she'll have to pick a side in the coming war between the old gods, whether she'd like to or not. Louisa will do whatever it takes to save herself—even if it means returning to Coldthistle House. And when she strikes another devil's bargain with Mr. Morningside, she's forced to join his supernatural staff on a journey to a gateway between worlds, a place of legend: the Tomb of Ancients. But as always, Louisa knows there's a catch. . . In this epic finale to Madeleine Roux's gripping House of Furies series, eerie photographs and beautiful illustrations from artist Iris Compiet help bring to life a world where gods and monsters are at war—and no one will escape the battle unscathed."

8. "The Tattooist of Auschwitz" by Heather Morris

"In April 1942, Lale Sokolov, a Slovakian Jew, is forcibly transported to the concentration camps at Auschwitz-Birkenau. When his captors discover that he speaks several languages, he is put to work as a Tätowierer (the German word for tattooist), tasked with permanently marking his fellow prisoners.

Imprisoned for more than two and a half years, Lale witnesses horrific atrocities and barbarism—but also incredible acts of bravery and compassion. Risking his own life, he uses his privileged position to exchange jewels and money from murdered Jews for food to keep his fellow prisoners alive.

One day in July 1942, Lale, prisoner 32407, comforts a trembling young woman waiting in line to have the number 34902 tattooed onto her arm. Her name is Gita, and in that first encounter, Lale vows to somehow survive the camp and marry her.

A vivid, harrowing, and ultimately hopeful re-creation of Lale Sokolov's experiences as the man who tattooed the arms of thousands of prisoners with what would become one of the most potent symbols of the Holocaust, The Tattooist of Auschwitz is also a testament to the endurance of love and humanity under the darkest possible conditions."





9. "You" by Caroline Kepnes

"When a beautiful aspiring writer strides into the East Village bookstore where Joe Goldberg works, he does what anyone would do: he Googles the name on her credit card.

There is only one Guinevere Beck in New York City. She has a public Facebook account and Tweets incessantly, telling Joe everything he needs to know: she is simply Beck to her friends, she went to Brown University, she lives on Bank Street, and she'll be at a bar in Brooklyn tonight—the perfect place for a "chance" meeting.

As Joe invisibly and obsessively takes control of Beck's life, he orchestrates a series of events to ensure Beck finds herself in his waiting arms. Moving from stalker to boyfriend, Joe transforms himself into Beck's perfect man, all while quietly removing the obstacles that stand in their way—even if it means murder."



10. "The Perfect Couple" by Elin Hilderbrand

"It's Nantucket wedding season, also known as summer-the sight of a bride racing down Main Street is as common as the sun setting at Madaket Beach. The Otis-Winbury wedding promises to be an event to remember: the groom's wealthy parents have spared no expense to host a lavish ceremony at their oceanfront estate.

But it's going to be memorable for all the wrong reasons after tragedy strikes: a body is discovered in Nantucket Harbor just hours before the ceremony-and everyone in the wedding party is suddenly a suspect. As Chief of Police Ed Kapenash interviews the bride, the groom, the groom's famous mystery-novelist mother, and even a member of his own family, he discovers that every wedding is a minefield-and no couple is perfect."

11. "Circe" by Madeline Miller

"In the house of Helios, god of the sun and mightiest of the Titans, a daughter is born. But Circe is a strange child—not powerful, like her father, nor viciously alluring like her mother. Turning to the world of mortals for companionship, she discovers that she does possess power—the power of witchcraft, which can transform rivals into monsters and menace the gods themselves.

Threatened, Zeus banishes her to a deserted island, where she hones her occult craft, tames wild beasts and crosses paths with many of the most famous figures in all of mythology, including the Minotaur, Daedalus and his doomed son Icarus, the murderous Medea, and, of course, wily Odysseus.

But there is danger, too, for a woman who stands alone, and Circe unwittingly draws the wrath of both men and gods, ultimately finding herself pitted against one of the most terrifying and vengeful of the Olympians. To protect what she loves most, Circe must summon all her strength and choose, once and for all, whether she belongs with the gods she is born from, or the mortals she has come to love."



12. "The Rules of Magic" by Alice Hoffman

"For the Owens family, love is a curse that began in 1620, when Maria Owens was charged with witchery for loving the wrong man.

Hundreds of years later, in New York City at the cusp of the sixties, when the whole world is about to change, Susanna Owens knows that her three children are dangerously unique. Difficult Franny, with skin as pale as milk and blood red hair, shy and beautiful Jet, who can read other people's thoughts, and charismatic Vincent, who began looking for trouble on the day he could walk.

From the start Susanna sets down rules for her children: No walking in the moonlight, no red shoes, no wearing black, no cats, no crows, no candles, no books about magic. And most importantly, never, ever, fall in love. But when her children visit their Aunt Isabelle, in the small Massachusetts town where the Owens family has been blamed for everything that has ever gone wrong, they uncover family secrets and begin to understand the truth of who they are. Back in New York City each begins a risky journey as they try to escape the family curse.

The Owens children cannot escape love even if they try, just as they cannot escape the pains of the human heart. The two beautiful sisters will grow up to be the revered, and sometimes feared, aunts in Practical Magic, while Vincent, their beloved brother, will leave an unexpected legacy."





13. "The Other Woman" by Sandie Jones

"Emily thinks Adam's perfect; the man she thought she'd never meet. But lurking in the shadows is a rival; a woman who shares a deep bond with the man she loves.

Emily chose Adam, but she didn't choose his mother Pammie. There's nothing a mother wouldn't do for her son, and now Emily is about to find out just how far Pammie will go to get what she wants: Emily gone forever."

14. "Her Daughter's Mother" by Daniela Petrova

"Lana Stone has never considered herself a stalker--until the night she impulsively follows a familiar face through the streets of New York's Upper West Side. Her target? The "anonymous" egg donor she'd selected through an agency, the one who's making motherhood possible for her. Hungry to learn more about her, Lana plans only to watch her from a distance. But when circumstances bring them face-to-face, an unexpected friendship is born.

Katya, a student at Columbia, is the yin to Lana's yang, an impulsive free spirit who lives life at the edge. And for pragmatic Lana, she's a breath of fresh air and a welcome distraction from her painful breakup with her baby's father. Then, just as suddenly as Katya entered Lana's life, she disappears--and Lana might have been the last person to see her before she went missing. Determined to find out what became of the woman to whom she owes so much, Lana digs into Katya's past, even as the police grow suspicious of her motives. But she's unprepared for the secrets she unearths, and their power to change everything she thought she knew about those she loves best..."

15. "The Last Resort" by Marissa Stapley

"The Harmony Resort promises hope for struggling marriages. Run by celebrity power couple Drs. Miles and Grace Markell, the "last resort" offers a chance for partners to repair their relationships in a luxurious setting on the gorgeous Mayan Riviera.

Johanna and Ben have a marriage that looks perfect on the surface, but in reality, they don't know each other at all. Shell and Colin fight constantly: after all, Colin is a workaholic, and Shell always comes second to his job as an executive at a powerful mining company. But what has really torn them apart is too devastating to talk about. When both couples begin Harmony's intensive therapy program, it becomes clear that Harmony is not all it seems—and neither are Miles and Grace themselves. What are they hiding, and what price will these couples pay for finding out?

As a deadly tropical storm descends on the coast, trapping the hosts and the guests on the resort, secrets are revealed, loyalties are tested and not one single person—or their marriage—will remain unchanged by what follows."



16. "The Woman in the Window" by A.J. Finn

"Anna Fox lives alone—a recluse in her New York City home, unable to venture outside. She spends her day drinking wine (maybe too much), watching old movies, recalling happier times . . . and spying on her neighbors.


Then the Russells move into the house across the way: a father, a mother, their teenage son. The perfect family. But when Anna, gazing out her window one night, sees something she shouldn't, her world begins to crumble—and its shocking secrets are laid bare.


What is real? What is imagined? Who is in danger? Who is in control? In this diabolically gripping thriller, no one—and nothing—is what it seems."

17. "An American Marriage" by Tayari Jones

"Newlyweds Celestial and Roy are the embodiment of both the American Dream and the New South. He is a young executive, and she is an artist on the brink of an exciting career. But as they settle into the routine of their life together, they are ripped apart by circumstances neither could have imagined. This novel is an exploration of love, loyalty, race, justice, and both Black masculinity and Black womanhood in 21st century America."

18. "The Sun Is Also a Star" by Nicola Yoon

"Natasha: I'm a girl who believes in science and facts. Not fate. Not destiny. Or dreams that will never come true. I'm definitely not the kind of girl who meets a cute boy on a crowded New York City street and falls in love with him. Not when my family is twelve hours away from being deported to Jamaica. Falling in love with him won't be my story.

Daniel: I've always been the good son, the good student, living up to my parents' high expectations. Never the poet. Or the dreamer. But when I see her, I forget about all that. Something about Natasha makes me think that fate has something much more extraordinary in store—for both of us.

The Universe: Every moment in our lives has brought us to this single moment. A million futures lie before us. Which one will come true?"



19. "The Hate U Give" by Angie Thomas

"Sixteen-year-old Starr lives in two worlds: the poor neighbourhood where she was born and raised and her posh high school in the suburbs. The uneasy balance between them is shattered when Starr is the only witness to the fatal shooting of her unarmed best friend, Khalil, by a police officer. Now what Starr says could destroy her community. It could also get her killed."

And many, MANY more!

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It's National Eosinophil Awareness Week And More People Should Be Talking About It

It's time to raise awareness about eosinophil-associated diseases and support those, including myself, who are affected.

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For anyone who is unaware, May 19 to May 25 is considered National Eosinophil Awareness Week as recognized by the American Partnership for Eosinophilic Disorders (Apfed) since 2007. The purpose of this week is to raise awareness and help educate individuals on the various eosinophil-associated diseases. Despite its existence being virtually unknown to many people, this week has become very significant in my life and I think more people should be having conversations about it.

If you had asked me about eosinophil-associated diseases two years ago, I wouldn't have been able to say a single thing besides maybe defining an eosinophil the way I learned to in my AP Biology class senior year of high school. But as of a few months ago, it has officially been one year since I was diagnosed with an eosinophil-associated disease — something I never imagined would happen in my life. While I won't share too much of my own experience because it's honestly quite personal and still a little sensitive to discuss, it's safe to say that eosinophils completely changed my life.

I was fracturing bones like it was my job — I think I had upwards of nine stress fractures in my legs and feet in a year and a half time period. I had to stop playing sports my senior year of high school and couldn't run at all. I was nauseous 24/7. I was rapidly losing weight to the point where I had lost close to 35 pounds and none of my clothes fit me. I couldn't swallow anything, including water. Eating was painful. I had no appetite.

I was sick and in pain ALL the time to the point where I would get emotional or even cry.

I missed school days, tests, exams, social events, and eventually had to quit my job for an entire summer because even getting out of bed was hard for me. Ultimately, even the decision about the college that I chose to attend was partially based on my health and the doctors I would need to visit frequently.

But the most significant thing was that I was experiencing severe depression and anxiety and was honestly just straight-up scared. Think about it: I was experiencing a wide range of life-altering symptoms yet no one could figure out why and even when they did, there was no cure and only limited options for treatment. Unfortunately, this is the reality for many patients and their families. The process of diagnosing an eosinophil-associated disease can take years and require pretty much every medical test you can even think of because these diseases are all classified as rare diseases.

I was experiencing symptoms for a year and the journey to an accurate diagnosis took about a year after that. The journey itself was not easy, as it involved numerous doctors and countless medical tests to eliminate other potential diagnoses like cancers, parasites or even celiac. Since then, I have been involved with treatment for a little over a year. For me, treatment involved several medications and steps, including gaining the weight I had lost.

But the main piece was cutting pretty much everything out of my diet, meaning no gluten, dairy, soy, eggs, seafood, or nuts. Gradually over time this treatment involves reintroducing the foods individually (each for a three-month period) to see what can be tolerated or which foods make my eosinophils act abnormally and then restricting my diet accordingly.

Since starting treatment my life has been gradually changing in a positive manner, which is something I couldn't have imagined when I initially became ill. Yes, I will still be sick for the rest of my life and experience the chronic waxing and waning of this disease, but hopefully years of experience and knowledge will make me better equipped to handle it. One day there may even be a cure. But until then I will continue to raise awareness and participate in National Eosinophil Awareness Week in solidarity with the few who are also sharing in my experience living with an eosinophil-associated disease.

While I wrote this article with the intention of participating in Eosinophil Awareness Week by raising awareness and educating (to some extent), it was about more than that. I wanted to give you a synopsis of my story and the challenges I face to make this week more understandable and more real. This was because I know that eosinophil is not only challenging to say (even I struggle) but also challenging to conceptualize.

If you're interested in learning more or you're still confused, I recommend doing some quick reading on Apfed's website because they are extremely helpful in the way they simplify the complex information.

If you would like to see what you can do during National Eosinophil Awareness Week, you can also click here to visit Apfed's day-by-day guide for the week, which included some fact sheets, information about wearing magenta to support the cause, and other information about individual participation.

Editor's note: The views expressed in this article are not intended to replace professional medical advice, diagnosis, or treatment.

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