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5 New Clinical Trials for Lupus Research

Nov 15, 2017

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I’ve been a dedicated advocate for lupus awareness and research for the past 2 years. A brief definition of Lupus: a life threatening autoimmune disease and there is no cure as of yet. I am proud to make aware that we (Lupus Advocates) are helping make ground for finding a cure for Lupus. I received an email from Lupus Research Alliance that there have been 5 new clinical trials that were initiated. I feel that with these trials we will be another step closer to finding a cure for Lupus. I personally wish that they would have had these trials when my mother was alive because maybe it would have bought her some extra time. The number one thing is, that doctors need to be more aware of the signs and symptoms of Lupus and that it is life-threatening, and also be able to properly diagnose it much earlier. The five clinical trials are:

1.) VAlitidation in Lupus of an Electronic Patient Reported Outcomes Tool (VALUE)

2.) Rayos Inhibits Fatigue in Lupus Erythematosus (RIFLE)

3.) Dynamic Imaging to Assess Variation in Lupus Nephritis (DIVINE)

4.) CC-220 (Cereblon Modulator)

5.) M2951 (Bruton’s Tyrosine Kinase Inhibitor)

If you or anyone you know is interested in knowing more about these clinical trials please contact Lupus Research Alliance at 646-884-6074

I am raising money that will benefit Lupus Research in memory of my mom who passed away back in May of 2014 from a battle with Lupus. For anyone who knew my mom knows she had a heart of gold and would literally give the shirt off her back for anyone. Back in 2012 she was first diagnosed with this ungodly disease. By 2013 she had lost the abilty to walk due to complete paralysis in her left leg. She couldn't even walk up the stairs, so like any son would do I carried her. So here I am raising money in her memory. Like I stated earlier I have been a dedicated advocate for Lupus Research for the passed 2 years and would like to continue being an advocate for the rest of my life. If you could find it in your heart to make a donation because no matter the amount every donation is another step closer to finding a cure for Lupus. Thanking you in advance!

https://www.gofundme.com/LupusResearchInMemoryOfLisa

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The Best Lines from the Fab Four

And in the end, the love you take is equal to the love you make

The sun is up, the sky is blue, it's beautiful and so are you

Love is old, love is new, love is all, love is you

There's nowhere you can be that isn't where you're meant to be

Life is very short, and there's no time for fussing and fighting, my friend

He say, "I know you, you know me", One thing I can tell you is you got to be free

Oh please, say to me, You'll let me be your man. And please say to me, You'll let me hold your hand

It was twenty years ago today, Sgt. Pepper taught the band to play. They've been going in and out of style, but they're guaranteed to raise a smile

Living is easy with eyes closed, misunderstanding all you see

Can you hear me? When it rains and shine, it's just a state of mind

Little darling, it's been long cold lonely winter. Little darling, it feels like years since it' s been here. Here comes the sun, Here comes the sun, and I say it's alright

We danced through the night and we held each other tight, and before too long I fell in love with her. Now, I'll never dance with another when I saw her standing there

I love you, I love you, I love you, that's all I want to say

You say you want a revolution. Well you know, we all want to change the world

All the lonely people, where do they all come from. All the lonely people, where do they all belong

Oh, I get by with a little help from my friends

Hey Jude, don't make it bad. Take a sad song and make it better

Yesterday, all my troubles seemed so far away. Now it looks as though they're here to stay. Oh, I believe in yesterday

And when the brokenhearted people, living in the world agree, there will be an answer, let it be.

And anytime you feel the pain, Hey Jude, refrain. Don't carry the world upon your shoulders

I'll give you all I got to give if you say you'll love me too. I may not have a lot to give but what I got I'll give to you. I don't care too much for money. Money can't buy me love

All you need is love, love is all you need

Whisper words of wisdom, let it be

Blackbird singing in the dead of night, Take these broken wings and learn to fly. All your life, You were only waiting for this moment to arise

Though I know I'll never lose affection, for people and things that went before. I know I'll often stop and think about them. In my life, I love you more

Obviously the best superpower.

There have been many lessons learned.

1. The importance of traditions.

2. How to be thankful for family and friends.

3. How to give back.

4. What the word "community" really means.

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7. To trust people, until you have a reason not to.

8. To be welcoming and accepting of everyone.

9. How to be my own, individual person.

10. How to work for what I want.

11. How to be great at giving directions.

12. How to be humble.

13. To be well-rounded.

14. How to be great at conflict resolution.

15. The beauty of getting outside and exploring.

16. To be prepared for anything.

17. That you don't always have to do it alone.

18. How to be creative.

19. To brush off gossip.

I have never been so thankful to know you.

Dealing with the inevitable realities of college life.

Don't freak out

Email the professor

Attend the first class

Keep attending class

Have a backup plan

Remember that everything works out at the end

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