May Is Celiac Disease Awareness Month, Here Are Some Things You Should Know
Start writing a post
popular

May Is Celiac Disease Awareness Month, Here Are Some Things You Should Know

It's so much more than "just" going gluten-free.

2568
May Is Celiac Disease Awareness Month, Here Are Some Things You Should Know
The Celiac Chef

If you know me, you probably know that dining out is probably the most stressful situation you could put me in.

Actually, eating at home is stressful.

Scratch that, eating is stressful.

May is Celiac Disease Awareness Month, and if you don't know what Celiac Disease is, that is totally okay. I didn't fully understand it at first, so let me give you the low-down on this super fun autoimmune condition.

Celiac Disease is a genetic disorder that affects 1 in 100 people, where the villi in your small intestine basically flatten when you ingest gluten (wheat, barley, rye, or any derivatives.) This can lead to a whole list of health problems, and the list is different for almost everyone with Celiac Disease. Some common symptoms include GI issues, brain fog, bloating, fatigue, nausea, anxiety, malnutrition, anemia, and stunted growth. This list is totally not inclusive; there are tons of symptoms that people don't even know are because of this condition until they start treatment. What is the treatment for this disease, you may ask?

Going gluten-free for the rest of your life.

This doesn't mean "just pick the croutons off your salad" or "you can put your gluten-free bread in the regular toaster." This means you have to carefully make sure that every single meal you eat for the rest of your life is safe and sans gluten.

This doesn't seem like such a big deal, but when you're getting food with friends, or going on a date with your significant other, or you're at Thanksgiving dinner with your aunt who doesn't know what gluten is and puts the stuffing fork in every other bowl of food, it's not so easy.

You have to constantly be an advocate for yourself.

You don't get to just order food from a restaurant, you have to now be that person that always asks where the food is made and if the chef can change their gloves and sanitize the cooking area if there isn't already a dedicated area (spoiler alert, there usually isn't).

This is sometimes incredibly uncomfortable, especially if you're not used to asking for special accommodations. It's almost always awkward to be in this position, so you learn to adapt in ways like sitting at the end of the table so you can speak quietly to the waiter/waitress about what they put in the house salad, or if they can prepare your meal on a clean surface away from all the flour in the kitchen.

Gluten is sneaky and pops up in things you wouldn't think of, like Twizzlers, tea bags, and soy sauce. I mean, WHY does there have to be wheat in those?

Sometimes, you just want to give it up and go back to life before where you didn't have to be the annoying restaurant patron and could grab a meal anywhere you wanted. The life you had before you had to read each and every ingredient on every single thing you pick up at the grocery store.

Sometimes it feels like people don't think the pain you feel after ingesting something you're not supposed to eat isn't legitimate, and it makes you want to push through just so you don't disappoint your friends and family.

It's extremely tempting, but then you remember that before you started eating foods that didn't hurt your body, you didn't want to eat anything. Food was not enjoyable, and you ate foods with the knowledge that you were going to suffer afterward but you didn't know why.

I never expect anyone to automatically know how to cater to my dietary needs, and I try to explain why I need to be careful about what I put in my body.

Honestly, the long-term consequences of continuing to eat gluten with Celiac Disease are scary.

Things like osteoporosis, diabetes, infertility, MS, cancer, and other issues are possible if you ignore your health. It is not guaranteed that everyone with Celiac Disease will acquire these issues, but the possibility is sometimes overwhelming.

I have been truly blessed enough to have had the most supportive network possible. My immediate family, significant other, and groups online have done nothing but help me find alternatives for foods I can't have anymore and listen to me complain when I do have a reaction (it's not all too fun for them, but they do it anyway.) I will never stop appreciating all that they do for me, and I hope that I support them in all the other ways that I can.

Having Celiac Disease isn't the end of the world.

It has been an opportunity for me to try a plethora of new foods that I would never have wanted had I been able to eat the gluten-filled option instead. I think everything happens for a reason, and as much as I would love to be able to grab a slice on the way to class or have a gyro from that new place on the corner, I'm just as happy to be healthy and feeling good eating my GF pizza.

Report this Content
This article has not been reviewed by Odyssey HQ and solely reflects the ideas and opinions of the creator.
Student Life

Waitlisted for a College Class? Here's What to Do!

Dealing with the inevitable realities of college life.

38621
college students waiting in a long line in the hallway
StableDiffusion

Course registration at college can be a big hassle and is almost never talked about. Classes you want to take fill up before you get a chance to register. You might change your mind about a class you want to take and must struggle to find another class to fit in the same time period. You also have to make sure no classes clash by time. Like I said, it's a big hassle.

This semester, I was waitlisted for two classes. Most people in this situation, especially first years, freak out because they don't know what to do. Here is what you should do when this happens.

Keep Reading...Show less
a man and a woman sitting on the beach in front of the sunset

Whether you met your new love interest online, through mutual friends, or another way entirely, you'll definitely want to know what you're getting into. I mean, really, what's the point in entering a relationship with someone if you don't know whether or not you're compatible on a very basic level?

Consider these 21 questions to ask in the talking stage when getting to know that new guy or girl you just started talking to:

Keep Reading...Show less
Lifestyle

Challah vs. Easter Bread: A Delicious Dilemma

Is there really such a difference in Challah bread or Easter Bread?

23031
loaves of challah and easter bread stacked up aside each other, an abundance of food in baskets
StableDiffusion

Ever since I could remember, it was a treat to receive Easter Bread made by my grandmother. We would only have it once a year and the wait was excruciating. Now that my grandmother has gotten older, she has stopped baking a lot of her recipes that require a lot of hand usage--her traditional Italian baking means no machines. So for the past few years, I have missed enjoying my Easter Bread.

Keep Reading...Show less
Adulting

Unlocking Lake People's Secrets: 15 Must-Knows!

There's no other place you'd rather be in the summer.

949462
Group of joyful friends sitting in a boat
Haley Harvey

The people that spend their summers at the lake are a unique group of people.

Whether you grew up going to the lake, have only recently started going, or have only been once or twice, you know it takes a certain kind of person to be a lake person. To the long-time lake people, the lake holds a special place in your heart, no matter how dirty the water may look.

Keep Reading...Show less
Student Life

Top 10 Reasons My School Rocks!

Why I Chose a Small School Over a Big University.

126770
man in black long sleeve shirt and black pants walking on white concrete pathway

I was asked so many times why I wanted to go to a small school when a big university is so much better. Don't get me wrong, I'm sure a big university is great but I absolutely love going to a small school. I know that I miss out on big sporting events and having people actually know where it is. I can't even count how many times I've been asked where it is and I know they won't know so I just say "somewhere in the middle of Wisconsin." But, I get to know most people at my school and I know my professors very well. Not to mention, being able to walk to the other side of campus in 5 minutes at a casual walking pace. I am so happy I made the decision to go to school where I did. I love my school and these are just a few reasons why.

Keep Reading...Show less

Subscribe to Our Newsletter

Facebook Comments