In short, every day is a struggle. Though many from the outside have no idea the internal struggle that I am having. Each day I wake up hoping that it's not going to be a rollercoaster with my symptoms, who seem to have a mind of their own often. This life is never one that I would have chosen for myself, but who would? Like many who suffer chronic illnesses, it's those invisible symptoms that cause us the most grief.
One of the things that I find most frustrating on a daily basis is trying to relay to others just exactly how I am feeling. Like, do other people truly understand that each activity for the day is laboring and could be the last thing I do before I crawl into bed begging for my symptoms to subside. There are days I just don't want other people to see how much I am suffering because I don't want to seem weak. Little do others know, I am a fighter. There are other days that I want someone to know how tired I am to my very core. Not the kind of tired that I can sleep it off and feel recharged when I wake up. But the kind of tired that no matter what I do, won't go away.
It's hard to look into my parents' eyes and tell them I just can't possibly make it through the day doing everything they want to do. I know they have to feel so hopeless, but there are days that my chronic illness can be all consuming.
Many of the individuals that live the chronic illness life are well aware of 'The Spoon Theory' by Christine Miserandino. Each little activity throughout the day, they all add up. Something as simple as doing laundry or standing for log periods of time is exhausting. Thus, after 'The Spoon Theory', these individuals with chronic illness started calling themselves "Spoonies".
I can never truly describe how I feel or what I am going through to someone else. Unless that someone was someone with a chronic illness. You have to walk in our shoes to get a true sense of what it is like.
It is so easy for me to feel alone because how can someone else understand? I don't want your sympathy, I just want your understanding.
For all the spoonies just trying to live as close to normal as possible.